We have made it through yet another hectic week!! We started out with Nathan's first physical therapy session. Nathan handled everything very well and will receive PT twice a month for now.
Nathan underwent another MRI and we discussed the results with his neurosurgeon on Thursday. The cyst and fourth ventricle that we have been keeping a close eye on still haven't resolved. Pressure is starting to build up in Nathan's head and in due time, he will have to undergo another surgery to alleviate this issue. For now, his doctor wants Nathan to continue to thrive at home and not intervene until necessary. We obviously want Nathan to be as big as possible before having another surgery. We were hoping these areas would resolve on their own. Unfortunately it's not the case and another brain surgery is in Nathan's near future. We will wait for Nathan to tell us when that time will come. The waiting game is something Steve and I just cannot get used to.
We also toured and interviewed two of the three hearing impaired schools - Central Institute for the Deaf and St. Joseph Institute for the Deaf. Both schools are amazing and the amount of support and technology available for the hearing impaired is awesome. We are anxious to visit the third school, The Moog Center for Deaf Education and then make a decision. Once we select a school, we will move forward to get Nathan fitted for hearing aids as soon as possible. Early intervention makes all the difference and we are fortunate to have such great schools within driving distance!!
Through all of this, Andrew remains the good little boy he has always been. He has no idea how he brightens up our days with his contagious smile and how his little eyes just light up our lives. Nathan even realizes it as he is already watching his older brother - Andrew LOVES to give Nathan kisses :) We are so blessed for our sons and only hope everything will soon settle down and we can figure out what normal will be for us.
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